A model of caregiving through the end of life: Seeking normal

Janice Penrod; Judith E. Hupcey; Peggy Z. Shipley; Susan J. Loeb; Brenda Baney

doi:10.1177/0193945911400920

A model of caregiving through the end of life: Seeking normal

Janice Penrod, Judith E. Hupcey, Peggy Z. Shipley, Susan J. Loeb, Brenda Baney

Research output: Contribution to journal › Article › peer-review

44 Scopus citations

Abstract

Informal family caregivers provide significant contributions to end-of-life (EOL) care. A theoretical model of the phases and transitions of EOL caregiving was explicated using grounded theory methods to explore the experiences of 46 family caregivers of adults suffering a variety of life-limiting conditions. The derived model describes four phases of caregiving spanning prediagnosis through bereavement. Phases are demarcated by key transitions experienced when the illness progression manifestly challenges the established "steady state" achieved by the caregiver. The basic social process was defined as "seeking normal" as caregivers sought reliable patterns of everyday life while meeting the demands of caregiving. Understanding the progression of EOL caregiving enables clinicians to better support family caregivers as both coproviders and corecipients of care.

Original language	English (US)
Pages (from-to)	174-193
Number of pages	20
Journal	Western Journal of Nursing Research
Volume	34
Issue number	2
DOIs	https://doi.org/10.1177/0193945911400920
State	Published - Mar 2012

All Science Journal Classification (ASJC) codes

Nursing(all)

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10.1177/0193945911400920

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title = "A model of caregiving through the end of life: Seeking normal",

abstract = "Informal family caregivers provide significant contributions to end-of-life (EOL) care. A theoretical model of the phases and transitions of EOL caregiving was explicated using grounded theory methods to explore the experiences of 46 family caregivers of adults suffering a variety of life-limiting conditions. The derived model describes four phases of caregiving spanning prediagnosis through bereavement. Phases are demarcated by key transitions experienced when the illness progression manifestly challenges the established {"}steady state{"} achieved by the caregiver. The basic social process was defined as {"}seeking normal{"} as caregivers sought reliable patterns of everyday life while meeting the demands of caregiving. Understanding the progression of EOL caregiving enables clinicians to better support family caregivers as both coproviders and corecipients of care.",

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note = "Funding Information: The authors received the following financial support for the research and/or authorship of this article: The project described was supported by Award Number R03NR008538 (PI: J. Penrod) and R01NR010127 (PI: J. Penrod) from the National Institute of Nursing Research. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institute of Nursing Research or the National Institutes of Health. ",

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N1 - Funding Information: The authors received the following financial support for the research and/or authorship of this article: The project described was supported by Award Number R03NR008538 (PI: J. Penrod) and R01NR010127 (PI: J. Penrod) from the National Institute of Nursing Research. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institute of Nursing Research or the National Institutes of Health.

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A model of caregiving through the end of life: Seeking normal

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