Amyotrophic lateral sclerosis–specific quality of life–short form (ALSSQOL-SF): A brief, reliable, and valid version of the ALSSQOL-R

Stephanie H. Felgoise, Richard Feinberg, Helen E. Stephens, Paul Barkhaus, Kevin Boylan, James Caress, Lora L. Clawson, Lauren Elman, Stephen A. Goutman, Leo Mccluskey, James Russell, Ezgi Tiryaki, Michael Weiss, Zachary Simmons

Research output: Contribution to journalArticle

3 Citations (Scopus)

Abstract

Introduction: The Amyotrophic Lateral Sclerosis (ALS)-Specific Quality of Life instrument and its revised version (ALSSQOL and ALSSQOL-R) have strong psychometric properties, and have demonstrated research and clinical utility. In this study we aimed to develop a short form (ALSSQOL-SF) suitable for limited clinic time and patient stamina. Methods: The ALSSQOL-SF was created using Item Response Theory and confirmatory factor analysis on 389 patients. A cross-validation sample of 162 patients assessed convergent, divergent, and construct validity of the ALSSQOL-SF compared with psychosocial and physical functioning measures. Results: The ALSSQOL-SF consisted of 20 items. Compared with the ALSSQOL-R, optimal precision was retained, and completion time was reduced from 15–25 minutes to 2–4 minutes. Psychometric properties for the ALSSQOL-SF and its subscales were strong. Discussion: The ALSSQOL-SF is a disease-specific global QOL instrument that has a short administration time suitable for clinical use, and can provide clinically useful, valid information about persons with ALS. Muscle Nerve, 2018.

Original languageEnglish (US)
JournalMuscle and Nerve
DOIs
StateAccepted/In press - Jan 1 2018

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Amyotrophic Lateral Sclerosis
Psychometrics
Statistical Factor Analysis
Quality of Life
Muscles
Research

All Science Journal Classification (ASJC) codes

  • Physiology
  • Clinical Neurology
  • Cellular and Molecular Neuroscience
  • Physiology (medical)

Cite this

Felgoise, Stephanie H. ; Feinberg, Richard ; Stephens, Helen E. ; Barkhaus, Paul ; Boylan, Kevin ; Caress, James ; Clawson, Lora L. ; Elman, Lauren ; Goutman, Stephen A. ; Mccluskey, Leo ; Russell, James ; Tiryaki, Ezgi ; Weiss, Michael ; Simmons, Zachary. / Amyotrophic lateral sclerosis–specific quality of life–short form (ALSSQOL-SF) : A brief, reliable, and valid version of the ALSSQOL-R. In: Muscle and Nerve. 2018.
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abstract = "Introduction: The Amyotrophic Lateral Sclerosis (ALS)-Specific Quality of Life instrument and its revised version (ALSSQOL and ALSSQOL-R) have strong psychometric properties, and have demonstrated research and clinical utility. In this study we aimed to develop a short form (ALSSQOL-SF) suitable for limited clinic time and patient stamina. Methods: The ALSSQOL-SF was created using Item Response Theory and confirmatory factor analysis on 389 patients. A cross-validation sample of 162 patients assessed convergent, divergent, and construct validity of the ALSSQOL-SF compared with psychosocial and physical functioning measures. Results: The ALSSQOL-SF consisted of 20 items. Compared with the ALSSQOL-R, optimal precision was retained, and completion time was reduced from 15–25 minutes to 2–4 minutes. Psychometric properties for the ALSSQOL-SF and its subscales were strong. Discussion: The ALSSQOL-SF is a disease-specific global QOL instrument that has a short administration time suitable for clinical use, and can provide clinically useful, valid information about persons with ALS. Muscle Nerve, 2018.",
author = "Felgoise, {Stephanie H.} and Richard Feinberg and Stephens, {Helen E.} and Paul Barkhaus and Kevin Boylan and James Caress and Clawson, {Lora L.} and Lauren Elman and Goutman, {Stephen A.} and Leo Mccluskey and James Russell and Ezgi Tiryaki and Michael Weiss and Zachary Simmons",
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Felgoise, SH, Feinberg, R, Stephens, HE, Barkhaus, P, Boylan, K, Caress, J, Clawson, LL, Elman, L, Goutman, SA, Mccluskey, L, Russell, J, Tiryaki, E, Weiss, M & Simmons, Z 2018, 'Amyotrophic lateral sclerosis–specific quality of life–short form (ALSSQOL-SF): A brief, reliable, and valid version of the ALSSQOL-R', Muscle and Nerve. https://doi.org/10.1002/mus.26203

Amyotrophic lateral sclerosis–specific quality of life–short form (ALSSQOL-SF) : A brief, reliable, and valid version of the ALSSQOL-R. / Felgoise, Stephanie H.; Feinberg, Richard; Stephens, Helen E.; Barkhaus, Paul; Boylan, Kevin; Caress, James; Clawson, Lora L.; Elman, Lauren; Goutman, Stephen A.; Mccluskey, Leo; Russell, James; Tiryaki, Ezgi; Weiss, Michael; Simmons, Zachary.

In: Muscle and Nerve, 01.01.2018.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Amyotrophic lateral sclerosis–specific quality of life–short form (ALSSQOL-SF)

T2 - A brief, reliable, and valid version of the ALSSQOL-R

AU - Felgoise, Stephanie H.

AU - Feinberg, Richard

AU - Stephens, Helen E.

AU - Barkhaus, Paul

AU - Boylan, Kevin

AU - Caress, James

AU - Clawson, Lora L.

AU - Elman, Lauren

AU - Goutman, Stephen A.

AU - Mccluskey, Leo

AU - Russell, James

AU - Tiryaki, Ezgi

AU - Weiss, Michael

AU - Simmons, Zachary

PY - 2018/1/1

Y1 - 2018/1/1

N2 - Introduction: The Amyotrophic Lateral Sclerosis (ALS)-Specific Quality of Life instrument and its revised version (ALSSQOL and ALSSQOL-R) have strong psychometric properties, and have demonstrated research and clinical utility. In this study we aimed to develop a short form (ALSSQOL-SF) suitable for limited clinic time and patient stamina. Methods: The ALSSQOL-SF was created using Item Response Theory and confirmatory factor analysis on 389 patients. A cross-validation sample of 162 patients assessed convergent, divergent, and construct validity of the ALSSQOL-SF compared with psychosocial and physical functioning measures. Results: The ALSSQOL-SF consisted of 20 items. Compared with the ALSSQOL-R, optimal precision was retained, and completion time was reduced from 15–25 minutes to 2–4 minutes. Psychometric properties for the ALSSQOL-SF and its subscales were strong. Discussion: The ALSSQOL-SF is a disease-specific global QOL instrument that has a short administration time suitable for clinical use, and can provide clinically useful, valid information about persons with ALS. Muscle Nerve, 2018.

AB - Introduction: The Amyotrophic Lateral Sclerosis (ALS)-Specific Quality of Life instrument and its revised version (ALSSQOL and ALSSQOL-R) have strong psychometric properties, and have demonstrated research and clinical utility. In this study we aimed to develop a short form (ALSSQOL-SF) suitable for limited clinic time and patient stamina. Methods: The ALSSQOL-SF was created using Item Response Theory and confirmatory factor analysis on 389 patients. A cross-validation sample of 162 patients assessed convergent, divergent, and construct validity of the ALSSQOL-SF compared with psychosocial and physical functioning measures. Results: The ALSSQOL-SF consisted of 20 items. Compared with the ALSSQOL-R, optimal precision was retained, and completion time was reduced from 15–25 minutes to 2–4 minutes. Psychometric properties for the ALSSQOL-SF and its subscales were strong. Discussion: The ALSSQOL-SF is a disease-specific global QOL instrument that has a short administration time suitable for clinical use, and can provide clinically useful, valid information about persons with ALS. Muscle Nerve, 2018.

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