@article{0c5671cbef214361b9aae0d7a8e55a57,
title = "{"}augmentative and Alternative Communication (AAC) Will Give You a Voice{"}: Key Practices in AAC Assessment and Intervention as Described by Persons with Amyotrophic Lateral Sclerosis",
abstract = "The purpose of this study was to describe the perceptions of persons with amyotrophic lateral sclerosis (pALS) who use augmentative and alternative communication (AAC) with the AAC assessment and intervention process. Twenty-one pALS with complex communication needs participated in a multipart survey (and follow-up e-mails) to provide information on their experiences with AAC assessment and intervention. A majority of the participants agreed with the importance of three key AAC intervention principles: appropriate staging of the timing of assessment and intervention activities, inclusion of communication partners, and the use of multiple modalities and strategies as communication supports. Most participants reported that their assessment and intervention experiences included at least some aspect of these three key practices. The results of this study suggest that the identified best practices in AAC should be reviewed and implemented on an individualized basis for pALS with complex communication needs.",
author = "David McNaughton and Felicia Giambalvo and Kim Kohler and Godfrey Nazareth and Jessica Caron and Susan Fager",
note = "Funding Information: Portions of this article were submitted by the second author in partial fulfillment of the Master{\textquoteright}s thesis requirements at the Department of Communication Sciences and Disorders, The Pennsylvania State University. This project was supported, in part, by funding to the Rehabilitation Engineering Research Center on Augmentative and Alternative Communication (RERC on AAC) from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR grant no. 90RE5017), which is a center within the Administration for Community Living, U.S. Department of Health and Human Services. The third author is also supported by a grant from the U.S. Department of Education (no. H325D130021). The content does not necessarily represent the policy of these funding agencies; readers should not assume endorsement by these agencies. The authors would like to offer their gratitude and appreciation to the participants who contributed their time, experiences, and ideas to this project. Funding Information: The authors research is funded by a grant from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR grant no. 90RE5017) to theRehabilitationEngineering ResearchCenter on Augmentative and Alternative Communication (RERC on AAC). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). In addition, the third author is also supported by a grant from the U.S. Department of Education (no.H325D130021). Funding Information: Financial: The authors{\textquoteright} research is funded by a grant from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR grant no. 90RE5017) to the Rehabilitation Engineering Research Center on Augmentative and Alternative Communication (RERC on AAC). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). In addition, the third author is also supported by a grant from the U.S. Department of Education (no. H325D130021).",
year = "2018",
doi = "10.1055/s-0038-1669992",
language = "English (US)",
volume = "39",
pages = "399--415",
journal = "Seminars in Speech and Language",
issn = "0734-0478",
publisher = "Thieme Medical Publishers",
number = "5",
}