Community-based game intervention to improve South Asian Indian Americans’ engagement with advanced care planning

Kavita Radhakrishnan, Lauren Van Scoy, Regina Jillapalli, Shubhada Saxena, Miyong T. Kim

Research output: Contribution to journalArticle

5 Citations (Scopus)

Abstract

Objective: Advance care planning (ACP) allows individuals to express their preferences for medical treatment in the event that they become incapable of making their own decisions. This study assessed the efficacy of a conversation game intervention for increasing South Asian Indian Americans’ (SAIAs’) engagement in ACP behaviors as well as the game’s acceptability and cultural appropriateness among SAIAs. Design: Eligible community-dwelling SAIAs were recruited at SAIA cultural events held in central Texas during the summer of 2016. Pregame questionnaires included demographics and the 55-item ACP Engagement Survey. Played in groups of 3–5, the game consists of 17 open-ended questions that prompt discussions of end-of-life issues. After each game session, focus groups and questionnaires were used to examine the game’s cultural appropriateness and self-rated conversation quality. Postintervention responses on the ACP Engagement Survey and rates of participation in ACP behaviors were collected after 3 months through phone interviews or online surveys. Data were analyzed using descriptive statistics, frequencies, and paired t-tests comparing pre/post averages at a .05 significance level. Results: Of the 47 participants, 64% were female, 62% had graduate degrees, 92% had lived in the U.S. for >10 years, 87% were first-generation immigrants, and 74% had no advance directive prior to the game. At the 3-month follow-up, 58% of participants had completed at least one ACP behavior, 42% had discussed end-of-life issues with loved ones, 15% did so with their healthcare providers, and 18% had created an advanced directive. ACP Engagement Survey scores increased significantly on all four of the process subscales by 3 months postgame. Conclusion: SAIA individuals who played a conversation game had a relatively high rate of performing ACP behaviors 3 months after the intervention. These findings suggest that conversation games may be useful tools for motivating people from minority communities to engage in ACP behaviors.

Original languageEnglish (US)
Pages (from-to)1-19
Number of pages19
JournalEthnicity and Health
DOIs
StateAccepted/In press - Jul 27 2017

Fingerprint

Advance Care Planning
Asian Americans
American Indian
planning
community
conversation
cultural event
Independent Living
Advance Directives
American Indians
Planning
Asia
questionnaire
first generation
descriptive statistics
physician's care
Focus Groups
online survey
Health Personnel
Surveys and Questionnaires

All Science Journal Classification (ASJC) codes

  • Cultural Studies
  • Arts and Humanities (miscellaneous)
  • Public Health, Environmental and Occupational Health

Cite this

Radhakrishnan, Kavita ; Van Scoy, Lauren ; Jillapalli, Regina ; Saxena, Shubhada ; Kim, Miyong T. / Community-based game intervention to improve South Asian Indian Americans’ engagement with advanced care planning. In: Ethnicity and Health. 2017 ; pp. 1-19.
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abstract = "Objective: Advance care planning (ACP) allows individuals to express their preferences for medical treatment in the event that they become incapable of making their own decisions. This study assessed the efficacy of a conversation game intervention for increasing South Asian Indian Americans’ (SAIAs’) engagement in ACP behaviors as well as the game’s acceptability and cultural appropriateness among SAIAs. Design: Eligible community-dwelling SAIAs were recruited at SAIA cultural events held in central Texas during the summer of 2016. Pregame questionnaires included demographics and the 55-item ACP Engagement Survey. Played in groups of 3–5, the game consists of 17 open-ended questions that prompt discussions of end-of-life issues. After each game session, focus groups and questionnaires were used to examine the game’s cultural appropriateness and self-rated conversation quality. Postintervention responses on the ACP Engagement Survey and rates of participation in ACP behaviors were collected after 3 months through phone interviews or online surveys. Data were analyzed using descriptive statistics, frequencies, and paired t-tests comparing pre/post averages at a .05 significance level. Results: Of the 47 participants, 64{\%} were female, 62{\%} had graduate degrees, 92{\%} had lived in the U.S. for >10 years, 87{\%} were first-generation immigrants, and 74{\%} had no advance directive prior to the game. At the 3-month follow-up, 58{\%} of participants had completed at least one ACP behavior, 42{\%} had discussed end-of-life issues with loved ones, 15{\%} did so with their healthcare providers, and 18{\%} had created an advanced directive. ACP Engagement Survey scores increased significantly on all four of the process subscales by 3 months postgame. Conclusion: SAIA individuals who played a conversation game had a relatively high rate of performing ACP behaviors 3 months after the intervention. These findings suggest that conversation games may be useful tools for motivating people from minority communities to engage in ACP behaviors.",
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Community-based game intervention to improve South Asian Indian Americans’ engagement with advanced care planning. / Radhakrishnan, Kavita; Van Scoy, Lauren; Jillapalli, Regina; Saxena, Shubhada; Kim, Miyong T.

In: Ethnicity and Health, 27.07.2017, p. 1-19.

Research output: Contribution to journalArticle

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