Disorders of Consciousness, Agency, and Health Care Decision Making: Lessons From a Developmental Model

Megan S. Wright, Claudia Kraft, Michael R. Ulrich, Joseph J. Fins

Research output: Contribution to journalArticle

6 Scopus citations

Abstract

The health care decision-making framework applied to adolescents, a process that gives minors an increasing role in decision making as they mature, should be applied to patients recovering from disorders of consciousness. The flexibility afforded by this framework allows for participation to change over time in accordance with the patient's evolution during the recovery process, unlike the rigid surrogate-focused model utilized for those with permanent incapacity. While the legal system may regard patients with disorders of consciousness and subsequent disability as incompetent to make decisions, respect for personhood and self-determination requires that the physician and surrogate involve the recovering patient in decision making to the maximal extent possible.

Original languageEnglish (US)
Pages (from-to)56-64
Number of pages9
JournalAJOB Neuroscience
Volume9
Issue number1
DOIs
StatePublished - Jan 2 2018

All Science Journal Classification (ASJC) codes

  • Neuroscience(all)

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