TY - JOUR
T1 - Feasibility and acceptability of a web-based advance care plan for dementia
AU - Behrens, Liza L.
AU - Morgan, Brianna
AU - Summerhayes, Emily
AU - Talwar, Sonia
AU - Burshnic-Neal, Vanessa L.
AU - Ersek, Mary
AU - Hodgson, Nancy
N1 - Funding Information:
Research reported in this publication was supported by the Penn Roybal Center on Palliative Care in Dementia, National Institute on Aging Grant P30AG064105. Dr. Behrens is supported by the National Institute of Nursing Research Ruth L. Kirschstein National Research Service Award program; T32NR009356. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.
Funding Information:
Research reported in this publication was supported by the Penn Roybal Center on Palliative Care in Dementia, National Institute on Aging Grant P30AG064105 . Dr. Behrens is supported by the National Institute of Nursing Research Ruth L. Kirschstein National Research Service Award program ; T32NR009356 . The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health .
Publisher Copyright:
© 2022 Elsevier Inc.
PY - 2022/3/1
Y1 - 2022/3/1
N2 - While advance care planning (ACP) can help elicit preferences and is associated with improved end-of-life outcomes, persons living with dementia (PLWD) in nursing homes are rarely included in ACP. Web-based decision aids are a readily available tool to engage PLWD in ACP, but none are designed for the unique needs of PLWD, particularly those residing in nursing homes. Our Memory Care Wishes (OMCW) was adapted from a publicly available web-based ACP tool in collaboration with dementia care experts. This study aimed to explore the acceptability of OMCW. We used a convergent, mixed methods design to describe PLWD and surrogates’ experiences using the OMCW website. Participants described ease of use, comfort with viewing, helpfulness for planning, and likelihood to recommend. Overall, OMCW is acceptable, however, PLWD continue to have difficulties understanding and engaging with some website content. Modifications were incorporated based on these findings, setting the stage for implementation and effectiveness testing.
AB - While advance care planning (ACP) can help elicit preferences and is associated with improved end-of-life outcomes, persons living with dementia (PLWD) in nursing homes are rarely included in ACP. Web-based decision aids are a readily available tool to engage PLWD in ACP, but none are designed for the unique needs of PLWD, particularly those residing in nursing homes. Our Memory Care Wishes (OMCW) was adapted from a publicly available web-based ACP tool in collaboration with dementia care experts. This study aimed to explore the acceptability of OMCW. We used a convergent, mixed methods design to describe PLWD and surrogates’ experiences using the OMCW website. Participants described ease of use, comfort with viewing, helpfulness for planning, and likelihood to recommend. Overall, OMCW is acceptable, however, PLWD continue to have difficulties understanding and engaging with some website content. Modifications were incorporated based on these findings, setting the stage for implementation and effectiveness testing.
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U2 - 10.1016/j.gerinurse.2022.02.022
DO - 10.1016/j.gerinurse.2022.02.022
M3 - Article
C2 - 35259603
AN - SCOPUS:85125652279
SN - 0197-4572
VL - 44
SP - 251
EP - 258
JO - Geriatric Nursing
JF - Geriatric Nursing
ER -
