Hemangiomas and vascular malformations

Analysis of diagnostic accuracy

Mark Very, Mark Nagy, Michele Carr, Sandy Collins, Linda Brodsky

Research output: Contribution to journalArticle

11 Citations (Scopus)

Abstract

Objectives: To evaluate the diagnostic accuracy and satisfaction of patient or family (or both) in the evaluation of hemangiomas and other vascular malformations. Study Design: Prospective, relational database. Methods: Ninety-eight patients participated in a prospective, Institutional Review Board-approved, relational database study in the Hemangioma and Vascular Birthmark Center at the Children's Hospital of Buffalo (Buffalo, NY) from Jul 1998 to April 2000. This included 68 patients with hemangioma and 30 with vascular malformations. Data regarding presenting and final diagnosis and satisfaction of patient or family (or both) were obtained. Results Analysis of diagnostic accuracy revealed a concurrence between initial and final combined clinical and magnetic resonance imaging-based diagnosis in only 37% of cases. Analysis of patient and family satisfaction with the care received from previous consultants revealed only 26% "entirely" satisfied, 26% "somewhat" satisfied, and 37% "not at all" satisfied. On average, 2.5 (SD = 1.6; range, 1-9; median, 2) different physicians saw the patient before the patient or family (or both) was satisfied. Conclusions: Accurate diagnosis of hemangiomas and vascular malformations remains a challenge fox physicians. Confusing terminology, lack of knowledge regarding lesion behavior, and poorly understood diagnostic criteria by physicians are some of the reasons for patient frustration. Education of primary care providers through improved communication helps to optimize a coordinated, interdisciplinary approach to patients and their families who present with vascular anomalies.

Original languageEnglish (US)
Pages (from-to)612-615
Number of pages4
JournalLaryngoscope
Volume112
Issue number4
DOIs
StatePublished - Jan 1 2002

Fingerprint

Vascular Malformations
Hemangioma
Patient Satisfaction
Buffaloes
Physicians
Blood Vessels
Databases
Frustration
Research Ethics Committees
Consultants
Terminology
Primary Health Care
Communication
Magnetic Resonance Imaging
Prospective Studies
Education

All Science Journal Classification (ASJC) codes

  • Otorhinolaryngology

Cite this

Very, Mark ; Nagy, Mark ; Carr, Michele ; Collins, Sandy ; Brodsky, Linda. / Hemangiomas and vascular malformations : Analysis of diagnostic accuracy. In: Laryngoscope. 2002 ; Vol. 112, No. 4. pp. 612-615.
@article{ddec957359bb4d799f667df5d327b3d2,
title = "Hemangiomas and vascular malformations: Analysis of diagnostic accuracy",
abstract = "Objectives: To evaluate the diagnostic accuracy and satisfaction of patient or family (or both) in the evaluation of hemangiomas and other vascular malformations. Study Design: Prospective, relational database. Methods: Ninety-eight patients participated in a prospective, Institutional Review Board-approved, relational database study in the Hemangioma and Vascular Birthmark Center at the Children's Hospital of Buffalo (Buffalo, NY) from Jul 1998 to April 2000. This included 68 patients with hemangioma and 30 with vascular malformations. Data regarding presenting and final diagnosis and satisfaction of patient or family (or both) were obtained. Results Analysis of diagnostic accuracy revealed a concurrence between initial and final combined clinical and magnetic resonance imaging-based diagnosis in only 37{\%} of cases. Analysis of patient and family satisfaction with the care received from previous consultants revealed only 26{\%} {"}entirely{"} satisfied, 26{\%} {"}somewhat{"} satisfied, and 37{\%} {"}not at all{"} satisfied. On average, 2.5 (SD = 1.6; range, 1-9; median, 2) different physicians saw the patient before the patient or family (or both) was satisfied. Conclusions: Accurate diagnosis of hemangiomas and vascular malformations remains a challenge fox physicians. Confusing terminology, lack of knowledge regarding lesion behavior, and poorly understood diagnostic criteria by physicians are some of the reasons for patient frustration. Education of primary care providers through improved communication helps to optimize a coordinated, interdisciplinary approach to patients and their families who present with vascular anomalies.",
author = "Mark Very and Mark Nagy and Michele Carr and Sandy Collins and Linda Brodsky",
year = "2002",
month = "1",
day = "1",
doi = "10.1097/00005537-200204000-00004",
language = "English (US)",
volume = "112",
pages = "612--615",
journal = "Laryngoscope",
issn = "0023-852X",
publisher = "John Wiley and Sons Inc.",
number = "4",

}

Very, M, Nagy, M, Carr, M, Collins, S & Brodsky, L 2002, 'Hemangiomas and vascular malformations: Analysis of diagnostic accuracy', Laryngoscope, vol. 112, no. 4, pp. 612-615. https://doi.org/10.1097/00005537-200204000-00004

Hemangiomas and vascular malformations : Analysis of diagnostic accuracy. / Very, Mark; Nagy, Mark; Carr, Michele; Collins, Sandy; Brodsky, Linda.

In: Laryngoscope, Vol. 112, No. 4, 01.01.2002, p. 612-615.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Hemangiomas and vascular malformations

T2 - Analysis of diagnostic accuracy

AU - Very, Mark

AU - Nagy, Mark

AU - Carr, Michele

AU - Collins, Sandy

AU - Brodsky, Linda

PY - 2002/1/1

Y1 - 2002/1/1

N2 - Objectives: To evaluate the diagnostic accuracy and satisfaction of patient or family (or both) in the evaluation of hemangiomas and other vascular malformations. Study Design: Prospective, relational database. Methods: Ninety-eight patients participated in a prospective, Institutional Review Board-approved, relational database study in the Hemangioma and Vascular Birthmark Center at the Children's Hospital of Buffalo (Buffalo, NY) from Jul 1998 to April 2000. This included 68 patients with hemangioma and 30 with vascular malformations. Data regarding presenting and final diagnosis and satisfaction of patient or family (or both) were obtained. Results Analysis of diagnostic accuracy revealed a concurrence between initial and final combined clinical and magnetic resonance imaging-based diagnosis in only 37% of cases. Analysis of patient and family satisfaction with the care received from previous consultants revealed only 26% "entirely" satisfied, 26% "somewhat" satisfied, and 37% "not at all" satisfied. On average, 2.5 (SD = 1.6; range, 1-9; median, 2) different physicians saw the patient before the patient or family (or both) was satisfied. Conclusions: Accurate diagnosis of hemangiomas and vascular malformations remains a challenge fox physicians. Confusing terminology, lack of knowledge regarding lesion behavior, and poorly understood diagnostic criteria by physicians are some of the reasons for patient frustration. Education of primary care providers through improved communication helps to optimize a coordinated, interdisciplinary approach to patients and their families who present with vascular anomalies.

AB - Objectives: To evaluate the diagnostic accuracy and satisfaction of patient or family (or both) in the evaluation of hemangiomas and other vascular malformations. Study Design: Prospective, relational database. Methods: Ninety-eight patients participated in a prospective, Institutional Review Board-approved, relational database study in the Hemangioma and Vascular Birthmark Center at the Children's Hospital of Buffalo (Buffalo, NY) from Jul 1998 to April 2000. This included 68 patients with hemangioma and 30 with vascular malformations. Data regarding presenting and final diagnosis and satisfaction of patient or family (or both) were obtained. Results Analysis of diagnostic accuracy revealed a concurrence between initial and final combined clinical and magnetic resonance imaging-based diagnosis in only 37% of cases. Analysis of patient and family satisfaction with the care received from previous consultants revealed only 26% "entirely" satisfied, 26% "somewhat" satisfied, and 37% "not at all" satisfied. On average, 2.5 (SD = 1.6; range, 1-9; median, 2) different physicians saw the patient before the patient or family (or both) was satisfied. Conclusions: Accurate diagnosis of hemangiomas and vascular malformations remains a challenge fox physicians. Confusing terminology, lack of knowledge regarding lesion behavior, and poorly understood diagnostic criteria by physicians are some of the reasons for patient frustration. Education of primary care providers through improved communication helps to optimize a coordinated, interdisciplinary approach to patients and their families who present with vascular anomalies.

UR - http://www.scopus.com/inward/record.url?scp=0036214601&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=0036214601&partnerID=8YFLogxK

U2 - 10.1097/00005537-200204000-00004

DO - 10.1097/00005537-200204000-00004

M3 - Article

VL - 112

SP - 612

EP - 615

JO - Laryngoscope

JF - Laryngoscope

SN - 0023-852X

IS - 4

ER -