Hemophilia Growth and Development Study: Caregiver report of youth and family adjustment to HIV disease and immunologic compromise

Janice D. Bordeaux; Katherine A. Loveland; David Lachar; James Stehbens; Terece S. Bell; Sharon Nichols; Nancy Amodei; Kristin Brelsford Adkins; E. Gomperts; W. Y. Wong; F. Kaufman; M. Nelson; S. Pearson; W. K. Hoots; K. Loveland; M. Cantini; A. Willoughby; R. Nugent; S. McKinlay; S. Donfield; C. T. Kisker; J. Stehbens; S. O'Conner; J. McKillip; P. Sirois; C. Sexauer; H. Huszti; F. Kiplinger; S. Hawk; J. Mangos; A. Scott; R. Davis; M. E. Eyster; D. Ungar; S. Neagley; G. Davignon; P. Mollen; B. Wicklund; A. Mehrhof

doi:10.1093/jpepsy/jsg004

Hemophilia Growth and Development Study: Caregiver report of youth and family adjustment to HIV disease and immunologic compromise

Janice D. Bordeaux, Katherine A. Loveland, David Lachar, James Stehbens, Terece S. Bell, Sharon Nichols, Nancy Amodei, Kristin Brelsford Adkins, E. Gomperts, W. Y. Wong, F. Kaufman, M. Nelson, S. Pearson, W. K. Hoots, K. Loveland, M. Cantini, A. Willoughby, R. Nugent, S. McKinlay, S. DonfieldC. T. Kisker, J. Stehbens, S. O'Conner, J. McKillip, P. Sirois, C. Sexauer, H. Huszti, F. Kiplinger, S. Hawk, J. Mangos, A. Scott, R. Davis, M. E. Eyster, D. Ungar, S. Neagley, G. Davignon, P. Mollen, B. Wicklund, A. Mehrhof

Research output: Contribution to journal › Article › peer-review

9 Scopus citations

Abstract

Objective: To assess differences in caregiver report of youth and family psychosocial adjustment associated with HIV infection and greater immune compromise in youths with hemophilia. Methods: Caregivers of 162 boys with hemophilia 8 to 20 years old completed three youth and family questionnaires (Personality Inventory for Children, Revised [PIC-R]; Questionnaire on Resources and Stress [QRS]; Family Environment Scale). Results: Caregivers of HIV positive (HIV+) youths reported greater health concerns, social withdrawal (PIC-R), physical and adaptive limitations associated with illness (QRS) in their sons, and more pessimism about their sons' future and negative attitudes about parenting (QRS). Caregivers of HIV+ youths with greater immune compromise reported greater concerns about their sons' health and greater pessimism about their futures, as well as lower levels of family integration and more limited family opportunities. Conclusions: Results suggest caregivers perceive psychosocial problems in HIV+ youths with hemophilia and their families; some problems are specifically associated with greater immune compromise.

Original language	English (US)
Pages (from-to)	175-183
Number of pages	9
Journal	Journal of pediatric psychology
Volume	28
Issue number	3
DOIs	https://doi.org/10.1093/jpepsy/jsg004
State	Published - Apr 2003

All Science Journal Classification (ASJC) codes

Pediatrics, Perinatology, and Child Health
Developmental and Educational Psychology

Access to Document

10.1093/jpepsy/jsg004

Cite this

Bordeaux, J. D., Loveland, K. A., Lachar, D., Stehbens, J., Bell, T. S., Nichols, S., Amodei, N., Adkins, K. B., Gomperts, E., Wong, W. Y., Kaufman, F., Nelson, M., Pearson, S., Hoots, W. K., Loveland, K., Cantini, M., Willoughby, A., Nugent, R., McKinlay, S., ... Mehrhof, A. (2003). Hemophilia Growth and Development Study: Caregiver report of youth and family adjustment to HIV disease and immunologic compromise. Journal of pediatric psychology, 28(3), 175-183. https://doi.org/10.1093/jpepsy/jsg004

@article{41ffc90d86ed416fa23ab0def48a7b83,

title = "Hemophilia Growth and Development Study: Caregiver report of youth and family adjustment to HIV disease and immunologic compromise",

abstract = "Objective: To assess differences in caregiver report of youth and family psychosocial adjustment associated with HIV infection and greater immune compromise in youths with hemophilia. Methods: Caregivers of 162 boys with hemophilia 8 to 20 years old completed three youth and family questionnaires (Personality Inventory for Children, Revised [PIC-R]; Questionnaire on Resources and Stress [QRS]; Family Environment Scale). Results: Caregivers of HIV positive (HIV+) youths reported greater health concerns, social withdrawal (PIC-R), physical and adaptive limitations associated with illness (QRS) in their sons, and more pessimism about their sons' future and negative attitudes about parenting (QRS). Caregivers of HIV+ youths with greater immune compromise reported greater concerns about their sons' health and greater pessimism about their futures, as well as lower levels of family integration and more limited family opportunities. Conclusions: Results suggest caregivers perceive psychosocial problems in HIV+ youths with hemophilia and their families; some problems are specifically associated with greater immune compromise.",

author = "Bordeaux, {Janice D.} and Loveland, {Katherine A.} and David Lachar and James Stehbens and Bell, {Terece S.} and Sharon Nichols and Nancy Amodei and Adkins, {Kristin Brelsford} and E. Gomperts and Wong, {W. Y.} and F. Kaufman and M. Nelson and S. Pearson and Hoots, {W. K.} and K. Loveland and M. Cantini and A. Willoughby and R. Nugent and S. McKinlay and S. Donfield and Kisker, {C. T.} and J. Stehbens and S. O'Conner and J. McKillip and P. Sirois and C. Sexauer and H. Huszti and F. Kiplinger and S. Hawk and J. Mangos and A. Scott and R. Davis and Eyster, {M. E.} and D. Ungar and S. Neagley and G. Davignon and P. Mollen and B. Wicklund and A. Mehrhof",

year = "2003",

month = apr,

doi = "10.1093/jpepsy/jsg004",

language = "English (US)",

volume = "28",

pages = "175--183",

journal = "Journal of Pediatric Psychology",

issn = "0146-8693",

publisher = "Oxford University Press",

number = "3",

}

Bordeaux, JD, Loveland, KA, Lachar, D, Stehbens, J, Bell, TS, Nichols, S, Amodei, N, Adkins, KB, Gomperts, E, Wong, WY, Kaufman, F, Nelson, M, Pearson, S, Hoots, WK, Loveland, K, Cantini, M, Willoughby, A, Nugent, R, McKinlay, S, Donfield, S, Kisker, CT, Stehbens, J, O'Conner, S, McKillip, J, Sirois, P, Sexauer, C, Huszti, H, Kiplinger, F, Hawk, S, Mangos, J, Scott, A, Davis, R, Eyster, ME, Ungar, D, Neagley, S, Davignon, G, Mollen, P, Wicklund, B & Mehrhof, A 2003, 'Hemophilia Growth and Development Study: Caregiver report of youth and family adjustment to HIV disease and immunologic compromise', Journal of pediatric psychology, vol. 28, no. 3, pp. 175-183. https://doi.org/10.1093/jpepsy/jsg004

TY - JOUR

T1 - Hemophilia Growth and Development Study

T2 - Caregiver report of youth and family adjustment to HIV disease and immunologic compromise

AU - Bordeaux, Janice D.

AU - Loveland, Katherine A.

AU - Lachar, David

AU - Stehbens, James

AU - Bell, Terece S.

AU - Nichols, Sharon

AU - Amodei, Nancy

AU - Adkins, Kristin Brelsford

AU - Gomperts, E.

AU - Wong, W. Y.

AU - Kaufman, F.

AU - Nelson, M.

AU - Pearson, S.

AU - Hoots, W. K.

AU - Loveland, K.

AU - Cantini, M.

AU - Willoughby, A.

AU - Nugent, R.

AU - McKinlay, S.

AU - Donfield, S.

AU - Kisker, C. T.

AU - Stehbens, J.

AU - O'Conner, S.

AU - McKillip, J.

AU - Sirois, P.

AU - Sexauer, C.

AU - Huszti, H.

AU - Kiplinger, F.

AU - Hawk, S.

AU - Mangos, J.

AU - Scott, A.

AU - Davis, R.

AU - Eyster, M. E.

AU - Ungar, D.

AU - Neagley, S.

AU - Davignon, G.

AU - Mollen, P.

AU - Wicklund, B.

AU - Mehrhof, A.

PY - 2003/4

Y1 - 2003/4

N2 - Objective: To assess differences in caregiver report of youth and family psychosocial adjustment associated with HIV infection and greater immune compromise in youths with hemophilia. Methods: Caregivers of 162 boys with hemophilia 8 to 20 years old completed three youth and family questionnaires (Personality Inventory for Children, Revised [PIC-R]; Questionnaire on Resources and Stress [QRS]; Family Environment Scale). Results: Caregivers of HIV positive (HIV+) youths reported greater health concerns, social withdrawal (PIC-R), physical and adaptive limitations associated with illness (QRS) in their sons, and more pessimism about their sons' future and negative attitudes about parenting (QRS). Caregivers of HIV+ youths with greater immune compromise reported greater concerns about their sons' health and greater pessimism about their futures, as well as lower levels of family integration and more limited family opportunities. Conclusions: Results suggest caregivers perceive psychosocial problems in HIV+ youths with hemophilia and their families; some problems are specifically associated with greater immune compromise.

AB - Objective: To assess differences in caregiver report of youth and family psychosocial adjustment associated with HIV infection and greater immune compromise in youths with hemophilia. Methods: Caregivers of 162 boys with hemophilia 8 to 20 years old completed three youth and family questionnaires (Personality Inventory for Children, Revised [PIC-R]; Questionnaire on Resources and Stress [QRS]; Family Environment Scale). Results: Caregivers of HIV positive (HIV+) youths reported greater health concerns, social withdrawal (PIC-R), physical and adaptive limitations associated with illness (QRS) in their sons, and more pessimism about their sons' future and negative attitudes about parenting (QRS). Caregivers of HIV+ youths with greater immune compromise reported greater concerns about their sons' health and greater pessimism about their futures, as well as lower levels of family integration and more limited family opportunities. Conclusions: Results suggest caregivers perceive psychosocial problems in HIV+ youths with hemophilia and their families; some problems are specifically associated with greater immune compromise.

UR - http://www.scopus.com/inward/record.url?scp=0037383653&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=0037383653&partnerID=8YFLogxK

U2 - 10.1093/jpepsy/jsg004

DO - 10.1093/jpepsy/jsg004

M3 - Article

C2 - 12654942

AN - SCOPUS:0037383653

SN - 0146-8693

VL - 28

SP - 175

EP - 183

JO - Journal of Pediatric Psychology

JF - Journal of Pediatric Psychology

IS - 3

ER -

Hemophilia Growth and Development Study: Caregiver report of youth and family adjustment to HIV disease and immunologic compromise

Abstract

All Science Journal Classification (ASJC) codes

Access to Document

Other files and links

Fingerprint

Cite this