Abstract
Purpose of review This article highlights efforts in pediatric rheumatology related to optimizing the care provided to patients with pediatric rheumatic diseases and describes various approaches to improve health outcomes. Recent findings Recent studies report low rates of remission, frequent occurrence of comorbidities, disease damage, and decreased health-related quality of life in pediatric rheumatic diseases. The Pediatric Rheumatology Care and Outcomes Improvement Network is a quality improvement learning network that has demonstrated improvement in the process of care measures through use of a centralized patient registry, and interventions, including previsit planning, population management, shared decision making, and patient/ parent engagement. A pediatric rheumatology patient-powered research network was established to enable patient and caregiver participation in setting research priorities and to facilitate data sharing to answer research questions. Quality measure development and benchmarking are proceeding in multiple pediatric rheumatic diseases. Summary The review summarizes the current efforts to improve care delivery and outcomes in pediatric rheumatic diseases through a learning health system approach that harnesses knowledge from the clinical encounter to serve quality improvement, research, and discovery. Incorporating standard approaches to medication treatment plans may reduce variation in care, including using the patient voice to design research studies to bring focus on more patient relevant outcomes. Video abstract http://links.lww.com/COR/A28.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 110-116 |
| Number of pages | 7 |
| Journal | Current Opinion in Rheumatology |
| Volume | 28 |
| Issue number | 2 |
| DOIs | |
| State | Published - Mar 1 2016 |
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All Science Journal Classification (ASJC) codes
- Rheumatology
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Improving care delivery and outcomes in pediatric rheumatic diseases. / Harris, Julia G.; Bingham, Catherine A.; Morgan, Esi M.
In: Current Opinion in Rheumatology, Vol. 28, No. 2, 01.03.2016, p. 110-116.Research output: Contribution to journal › Review article
TY - JOUR
T1 - Improving care delivery and outcomes in pediatric rheumatic diseases
AU - Harris, Julia G.
AU - Bingham, Catherine A.
AU - Morgan, Esi M.
PY - 2016/3/1
Y1 - 2016/3/1
N2 - Purpose of review This article highlights efforts in pediatric rheumatology related to optimizing the care provided to patients with pediatric rheumatic diseases and describes various approaches to improve health outcomes. Recent findings Recent studies report low rates of remission, frequent occurrence of comorbidities, disease damage, and decreased health-related quality of life in pediatric rheumatic diseases. The Pediatric Rheumatology Care and Outcomes Improvement Network is a quality improvement learning network that has demonstrated improvement in the process of care measures through use of a centralized patient registry, and interventions, including previsit planning, population management, shared decision making, and patient/ parent engagement. A pediatric rheumatology patient-powered research network was established to enable patient and caregiver participation in setting research priorities and to facilitate data sharing to answer research questions. Quality measure development and benchmarking are proceeding in multiple pediatric rheumatic diseases. Summary The review summarizes the current efforts to improve care delivery and outcomes in pediatric rheumatic diseases through a learning health system approach that harnesses knowledge from the clinical encounter to serve quality improvement, research, and discovery. Incorporating standard approaches to medication treatment plans may reduce variation in care, including using the patient voice to design research studies to bring focus on more patient relevant outcomes. Video abstract http://links.lww.com/COR/A28.
AB - Purpose of review This article highlights efforts in pediatric rheumatology related to optimizing the care provided to patients with pediatric rheumatic diseases and describes various approaches to improve health outcomes. Recent findings Recent studies report low rates of remission, frequent occurrence of comorbidities, disease damage, and decreased health-related quality of life in pediatric rheumatic diseases. The Pediatric Rheumatology Care and Outcomes Improvement Network is a quality improvement learning network that has demonstrated improvement in the process of care measures through use of a centralized patient registry, and interventions, including previsit planning, population management, shared decision making, and patient/ parent engagement. A pediatric rheumatology patient-powered research network was established to enable patient and caregiver participation in setting research priorities and to facilitate data sharing to answer research questions. Quality measure development and benchmarking are proceeding in multiple pediatric rheumatic diseases. Summary The review summarizes the current efforts to improve care delivery and outcomes in pediatric rheumatic diseases through a learning health system approach that harnesses knowledge from the clinical encounter to serve quality improvement, research, and discovery. Incorporating standard approaches to medication treatment plans may reduce variation in care, including using the patient voice to design research studies to bring focus on more patient relevant outcomes. Video abstract http://links.lww.com/COR/A28.
UR - http://www.scopus.com/inward/record.url?scp=84957435849&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84957435849&partnerID=8YFLogxK
U2 - 10.1097/BOR.0000000000000257
DO - 10.1097/BOR.0000000000000257
M3 - Review article
C2 - 26780426
AN - SCOPUS:84957435849
VL - 28
SP - 110
EP - 116
JO - Current Opinion in Rheumatology
JF - Current Opinion in Rheumatology
SN - 1040-8711
IS - 2
ER -