Improving care delivery and outcomes in pediatric rheumatic diseases

Julia G. Harris, Catherine A. Bingham, Esi M. Morgan

Research output: Contribution to journalReview articlepeer-review

26 Scopus citations


Purpose of review This article highlights efforts in pediatric rheumatology related to optimizing the care provided to patients with pediatric rheumatic diseases and describes various approaches to improve health outcomes. Recent findings Recent studies report low rates of remission, frequent occurrence of comorbidities, disease damage, and decreased health-related quality of life in pediatric rheumatic diseases. The Pediatric Rheumatology Care and Outcomes Improvement Network is a quality improvement learning network that has demonstrated improvement in the process of care measures through use of a centralized patient registry, and interventions, including previsit planning, population management, shared decision making, and patient/ parent engagement. A pediatric rheumatology patient-powered research network was established to enable patient and caregiver participation in setting research priorities and to facilitate data sharing to answer research questions. Quality measure development and benchmarking are proceeding in multiple pediatric rheumatic diseases. Summary The review summarizes the current efforts to improve care delivery and outcomes in pediatric rheumatic diseases through a learning health system approach that harnesses knowledge from the clinical encounter to serve quality improvement, research, and discovery. Incorporating standard approaches to medication treatment plans may reduce variation in care, including using the patient voice to design research studies to bring focus on more patient relevant outcomes. Video abstract

Original languageEnglish (US)
Pages (from-to)110-116
Number of pages7
JournalCurrent Opinion in Rheumatology
Issue number2
StatePublished - Mar 1 2016

All Science Journal Classification (ASJC) codes

  • Rheumatology


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