Intergenerational caregivers of parents with end-stage heart failure

Windy Williams Alonso, Lisa Ann Kitko, Judith Hupcey

Research output: Contribution to journalArticle

Abstract

Purpose: The purpose of this study was to longitudinally explore the experiences of young adult, adult, and older adult intergenerational caregivers caring for a parent with end-stage heart failure (HF). Design: This study was a secondary analysis of qualitative data collected during a longitudinal study that sought to determine the palliative care needs of individuals with end-stage HF and their family caregivers. Methods: Longitudinal interviews from 23 young adult, adult, and older adult children who were caring for a parent with end-stage HF were selected for thematic analysis. Researchers individually analyzed the interviews and then, as a group, came to a consensus about themes. Findings: Five major themes were identified: caregiver resources, role management, caregiver-parent relationships, filial responsibility, and personal benefits and challenges. Conclusions: These intergenerational caregivers struggled to balance their busy lives and caregiving roles. However, most felt supported by other family members or external resources. Longitudinal findings support a need for improved employer-based support for intergenerational caregivers and special attention to young carers in research and practice. Recognition of and advocacy for intergenerational caregivers providing care for a chronically ill parent is needed.

Original languageEnglish (US)
Pages (from-to)413-435
Number of pages23
JournalResearch and Theory for Nursing Practice
Volume32
Issue number4
DOIs
StatePublished - Jan 1 2018

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Caregivers
Heart Failure
Parents
Young Adult
Interviews
Adult Children
Palliative Care
Longitudinal Studies
Consensus
Chronic Disease
Research Personnel
Research

All Science Journal Classification (ASJC) codes

  • Research and Theory

Cite this

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Intergenerational caregivers of parents with end-stage heart failure. / Alonso, Windy Williams; Kitko, Lisa Ann; Hupcey, Judith.

In: Research and Theory for Nursing Practice, Vol. 32, No. 4, 01.01.2018, p. 413-435.

Research output: Contribution to journalArticle

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