TY - JOUR
T1 - Longitudinal family caregiving experiences in heart failure
T2 - Secondary qualitative analysis of interviews
AU - Choi, Soyoung
AU - Kitko, Lisa
AU - Hupcey, Judith
AU - Birriel, Barbara
N1 - Funding Information:
This work was supported by the National Institute Health and National Institute Nursing Research [NIH/NINR grant #R01NR013419 ].
Publisher Copyright:
© 2021 Elsevier Inc.
PY - 2021/9/1
Y1 - 2021/9/1
N2 - Background: Considering the potential impacts of family caregivers on heart failure management and the costs of healthcare, health professionals need to pay attention to the challenges faced by family caregivers. Objective: This study longitudinally explored the caregiving experiences of family caregivers of persons with heart failure. Methods: Serial interview scripts collected from 53 family caregivers were analyzed using a content analysis method. Results: The following themes emerged: (1) accumulating knowledge and skills for caregiving; (2) losing a sense of control; (3) balancing an unstable life; (4) constructing illness memory; (5) centering the patient in daily life; (6) accepting the loss of a family member; (7) coping with grief by drawing on social support; (8) facing financial responsibility; and (9) rethinking hospice care. Conclusion: Family caregivers experience concern about unpredictable caregiving years, disease's fluctuating symptoms and poor prognosis. More educational opportunities, financial counseling programs, and palliative care consultations should be provided.
AB - Background: Considering the potential impacts of family caregivers on heart failure management and the costs of healthcare, health professionals need to pay attention to the challenges faced by family caregivers. Objective: This study longitudinally explored the caregiving experiences of family caregivers of persons with heart failure. Methods: Serial interview scripts collected from 53 family caregivers were analyzed using a content analysis method. Results: The following themes emerged: (1) accumulating knowledge and skills for caregiving; (2) losing a sense of control; (3) balancing an unstable life; (4) constructing illness memory; (5) centering the patient in daily life; (6) accepting the loss of a family member; (7) coping with grief by drawing on social support; (8) facing financial responsibility; and (9) rethinking hospice care. Conclusion: Family caregivers experience concern about unpredictable caregiving years, disease's fluctuating symptoms and poor prognosis. More educational opportunities, financial counseling programs, and palliative care consultations should be provided.
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U2 - 10.1016/j.hrtlng.2021.05.002
DO - 10.1016/j.hrtlng.2021.05.002
M3 - Article
C2 - 34091108
AN - SCOPUS:85107312977
VL - 50
SP - 627
EP - 633
JO - Heart and Lung: Journal of Acute and Critical Care
JF - Heart and Lung: Journal of Acute and Critical Care
SN - 0147-9563
IS - 5
ER -