Patient experiences with oily skin: The qualitative development of content for two new patient reported outcome questionnaires

Robert Arbuckle, Mark J. Atkinson, Marci Clark, Linda Abetz, Jan Lohs, Ilka Kuhagen, Jane Harness, Zoe Draelos, Diane Thiboutot, Ulrike Blume-Peytavi, Kati Copley-Merriman

Research output: Contribution to journalArticle

15 Citations (Scopus)

Abstract

Objective: To develop the content for two new patient reported outcome (PRO) measures to: a) assess the severity of symptoms; and b) the impact of facial skin oiliness on emotional wellbeing using qualitative data from face to face, and internet focus groups in Germany and the US. Methods: Using input from initial treatment satisfaction focus groups (n = 42), a review of relevant literature and expert clinicians (n = 3), a discussion guide was developed to guide qualitative inquiry using Internet focus groups (IFGs). IFGs were conducted with German (n = 26) and US (n = 28) sufferers of oily skin. Questionnaire items were generated using coded transcript data from the focus groups. Cognitive debriefing was conducted online with 42 participants and face to face with an additional five participants to assess the comprehension of the items. Results: There were equal numbers of male and female participants; mean age was 35.4 (SD 9.3) years. On average, participants had had oily skin for 15.2 years, and 74% (n = 40) reported having mild-moderate acne. Participants reported using visual, tactile and sensory (feel without touching their face) methods to evaluate the severity of facial oiliness. Oily facial skin had both an emotional and social impact, and was associated with feelings of unattractiveness, self-consciousness, embarrassment, irritation and frustration. Items were generated for a measure of oily skin severity (Oily Skin Self-Assessment Scale) and a measure of the impact of oily skin on emotional well-being (Oily Skin Impact Scale). Cognitive debriefing resulted in minor changes to the draft items and confirmed their face and content validity. Conclusion: The research provides insight into the experience of having oily skin and illustrates significant difficulties associated with the condition. Item content was developed for early versions of two PRO measures of the symptoms and emotional impact of oily facial skin. The psychometric validation of these measures reported elsewhere.

Original languageEnglish (US)
Article number80
JournalHealth and Quality of Life Outcomes
Volume6
DOIs
StatePublished - Oct 16 2008

Fingerprint

Skin
Focus Groups
Internet
Patient Reported Outcome Measures
Surveys and Questionnaires
Frustration
Acne Vulgaris
Touch
Social Change
Consciousness
Psychometrics
Reproducibility of Results
Germany
Emotions
Research

All Science Journal Classification (ASJC) codes

  • Public Health, Environmental and Occupational Health

Cite this

Arbuckle, Robert ; Atkinson, Mark J. ; Clark, Marci ; Abetz, Linda ; Lohs, Jan ; Kuhagen, Ilka ; Harness, Jane ; Draelos, Zoe ; Thiboutot, Diane ; Blume-Peytavi, Ulrike ; Copley-Merriman, Kati. / Patient experiences with oily skin : The qualitative development of content for two new patient reported outcome questionnaires. In: Health and Quality of Life Outcomes. 2008 ; Vol. 6.
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Arbuckle, R, Atkinson, MJ, Clark, M, Abetz, L, Lohs, J, Kuhagen, I, Harness, J, Draelos, Z, Thiboutot, D, Blume-Peytavi, U & Copley-Merriman, K 2008, 'Patient experiences with oily skin: The qualitative development of content for two new patient reported outcome questionnaires', Health and Quality of Life Outcomes, vol. 6, 80. https://doi.org/10.1186/1477-7525-6-80

Patient experiences with oily skin : The qualitative development of content for two new patient reported outcome questionnaires. / Arbuckle, Robert; Atkinson, Mark J.; Clark, Marci; Abetz, Linda; Lohs, Jan; Kuhagen, Ilka; Harness, Jane; Draelos, Zoe; Thiboutot, Diane; Blume-Peytavi, Ulrike; Copley-Merriman, Kati.

In: Health and Quality of Life Outcomes, Vol. 6, 80, 16.10.2008.

Research output: Contribution to journalArticle

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T2 - The qualitative development of content for two new patient reported outcome questionnaires

AU - Arbuckle, Robert

AU - Atkinson, Mark J.

AU - Clark, Marci

AU - Abetz, Linda

AU - Lohs, Jan

AU - Kuhagen, Ilka

AU - Harness, Jane

AU - Draelos, Zoe

AU - Thiboutot, Diane

AU - Blume-Peytavi, Ulrike

AU - Copley-Merriman, Kati

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N2 - Objective: To develop the content for two new patient reported outcome (PRO) measures to: a) assess the severity of symptoms; and b) the impact of facial skin oiliness on emotional wellbeing using qualitative data from face to face, and internet focus groups in Germany and the US. Methods: Using input from initial treatment satisfaction focus groups (n = 42), a review of relevant literature and expert clinicians (n = 3), a discussion guide was developed to guide qualitative inquiry using Internet focus groups (IFGs). IFGs were conducted with German (n = 26) and US (n = 28) sufferers of oily skin. Questionnaire items were generated using coded transcript data from the focus groups. Cognitive debriefing was conducted online with 42 participants and face to face with an additional five participants to assess the comprehension of the items. Results: There were equal numbers of male and female participants; mean age was 35.4 (SD 9.3) years. On average, participants had had oily skin for 15.2 years, and 74% (n = 40) reported having mild-moderate acne. Participants reported using visual, tactile and sensory (feel without touching their face) methods to evaluate the severity of facial oiliness. Oily facial skin had both an emotional and social impact, and was associated with feelings of unattractiveness, self-consciousness, embarrassment, irritation and frustration. Items were generated for a measure of oily skin severity (Oily Skin Self-Assessment Scale) and a measure of the impact of oily skin on emotional well-being (Oily Skin Impact Scale). Cognitive debriefing resulted in minor changes to the draft items and confirmed their face and content validity. Conclusion: The research provides insight into the experience of having oily skin and illustrates significant difficulties associated with the condition. Item content was developed for early versions of two PRO measures of the symptoms and emotional impact of oily facial skin. The psychometric validation of these measures reported elsewhere.

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