TY - JOUR
T1 - Patients' decision making process and expectations of a left ventricular assist device pre and post implantation
AU - Kitko, Lisa A.
AU - Hupcey, Judith E.
AU - Birriel, Barbara
AU - Alonso, Windy
N1 - Funding Information:
The authors would like to thank Maureen Palese, RN, MSN for her assistance with data collection.
Funding Information:
Funding: Research reported in this manuscript was supported by National Institute of Nursing Research of the National Institutes of Health under award number 1RO1NRO13419. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.
Publisher Copyright:
© 2016 Elsevier Inc.
PY - 2016/3/1
Y1 - 2016/3/1
N2 - Objectives: To examine patients' pre-implantation decision-making and pre and post-implantation expectations of left ventricular assist devices (LVADs). Background: LVADs have been shown to improve both quantity and quality of life of patients living with Stage D heart failure (HF). However, they also pose significant risks. Methods: 15 LVAD participants followed in a longitudinal study of Stage D HF patients were included in this thematic analysis. Results: Three themes were identified: no choice; I thought I would be doing better; I feel good, but now what. Evidence from pre-implantation to post-implantation suggested that patients' perceived expectations of quality of life improvement were not met. Conclusions: In light of their declining health, most patients felt their only alternative to implantation was death. In the post-implantation period, patients expected greater improvements in their quality of life. Evidence based guidelines for discussions of goals of care, post-implant expectations, and palliative care are necessary.
AB - Objectives: To examine patients' pre-implantation decision-making and pre and post-implantation expectations of left ventricular assist devices (LVADs). Background: LVADs have been shown to improve both quantity and quality of life of patients living with Stage D heart failure (HF). However, they also pose significant risks. Methods: 15 LVAD participants followed in a longitudinal study of Stage D HF patients were included in this thematic analysis. Results: Three themes were identified: no choice; I thought I would be doing better; I feel good, but now what. Evidence from pre-implantation to post-implantation suggested that patients' perceived expectations of quality of life improvement were not met. Conclusions: In light of their declining health, most patients felt their only alternative to implantation was death. In the post-implantation period, patients expected greater improvements in their quality of life. Evidence based guidelines for discussions of goals of care, post-implant expectations, and palliative care are necessary.
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U2 - 10.1016/j.hrtlng.2015.12.003
DO - 10.1016/j.hrtlng.2015.12.003
M3 - Article
C2 - 26742707
AN - SCOPUS:84959082769
SN - 0147-9563
VL - 45
SP - 95
EP - 99
JO - Heart and Lung: Journal of Acute and Critical Care
JF - Heart and Lung: Journal of Acute and Critical Care
IS - 2
ER -