Proxy healthcare decision-making for persons with intellectual disability: Perspectives of residential-agency directors

Kathleen M. Fisher, Fredrick K. Orkin, Michael J. Green, Vernon M. Chinchilli, Anand Bhattacharya

Research output: Contribution to journalArticlepeer-review

12 Scopus citations

Abstract

Directors of residential agencies for persons with intellectual disability in one U.S. state completed a self-administered, mailed survey to assess relative importance of information sources and decision factors in proxy healthcare decision-making. The most important sources were physician recommendations and input from the person; family input, care staff recommendations, and medical records were less valued. The person's wishes and best interests and recommendations of medical experts were the most important decision factors. Less important were benefits and risks of the intervention, family wishes, and health status; little emphasis was accorded to religious affiliation and extra cost to agency. More research is needed on how best to elicit the wishes and determine what constitutes the "best interests" of these vulnerable individuals.

Original languageEnglish (US)
Pages (from-to)401-410
Number of pages10
JournalAmerican Journal on Intellectual and Developmental Disabilities
Volume114
Issue number6
DOIs
StatePublished - Nov 2009

All Science Journal Classification (ASJC) codes

  • Pediatrics, Perinatology, and Child Health
  • Neuropsychology and Physiological Psychology
  • Developmental and Educational Psychology
  • Arts and Humanities (miscellaneous)
  • Clinical Neurology
  • Psychiatry and Mental health

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