Quality of life and measures of quality of life in patients with neuromuscular disorders

Ted M. Burns, Christopher D. Graham, Michael R. Rose, Zachary Simmons

Research output: Contribution to journalReview article

61 Citations (Scopus)

Abstract

In this review we present an overview of quality of life (QOL) and QOL measures in neuromuscular disorders. We discuss the characteristics of QOL measures used in neuromuscular research, highlighting differences between generic versus disease-specific and global versus health-related QOL instruments. The phenomenon of response shift is reviewed. Commonly used QOL instruments are reviewed for amyotrophic lateral sclerosis, muscle diseases, myasthenia gravis, and polyneuropathy. We also review some of what is known about QOL for patients with these neuromuscular disorders.

Original languageEnglish (US)
Pages (from-to)9-25
Number of pages17
JournalMuscle and Nerve
Volume46
Issue number1
DOIs
StatePublished - Jul 1 2012

Fingerprint

Quality of Life
Polyneuropathies
Myasthenia Gravis
Amyotrophic Lateral Sclerosis
Muscles
Research

All Science Journal Classification (ASJC) codes

  • Physiology
  • Clinical Neurology
  • Cellular and Molecular Neuroscience
  • Physiology (medical)

Cite this

Burns, Ted M. ; Graham, Christopher D. ; Rose, Michael R. ; Simmons, Zachary. / Quality of life and measures of quality of life in patients with neuromuscular disorders. In: Muscle and Nerve. 2012 ; Vol. 46, No. 1. pp. 9-25.
@article{bd5613ab6e4d4b7d8ed4ca464a840e87,
title = "Quality of life and measures of quality of life in patients with neuromuscular disorders",
abstract = "In this review we present an overview of quality of life (QOL) and QOL measures in neuromuscular disorders. We discuss the characteristics of QOL measures used in neuromuscular research, highlighting differences between generic versus disease-specific and global versus health-related QOL instruments. The phenomenon of response shift is reviewed. Commonly used QOL instruments are reviewed for amyotrophic lateral sclerosis, muscle diseases, myasthenia gravis, and polyneuropathy. We also review some of what is known about QOL for patients with these neuromuscular disorders.",
author = "Burns, {Ted M.} and Graham, {Christopher D.} and Rose, {Michael R.} and Zachary Simmons",
year = "2012",
month = "7",
day = "1",
doi = "10.1002/mus.23245",
language = "English (US)",
volume = "46",
pages = "9--25",
journal = "Muscle and Nerve",
issn = "0148-639X",
publisher = "John Wiley and Sons Inc.",
number = "1",

}

Quality of life and measures of quality of life in patients with neuromuscular disorders. / Burns, Ted M.; Graham, Christopher D.; Rose, Michael R.; Simmons, Zachary.

In: Muscle and Nerve, Vol. 46, No. 1, 01.07.2012, p. 9-25.

Research output: Contribution to journalReview article

TY - JOUR

T1 - Quality of life and measures of quality of life in patients with neuromuscular disorders

AU - Burns, Ted M.

AU - Graham, Christopher D.

AU - Rose, Michael R.

AU - Simmons, Zachary

PY - 2012/7/1

Y1 - 2012/7/1

N2 - In this review we present an overview of quality of life (QOL) and QOL measures in neuromuscular disorders. We discuss the characteristics of QOL measures used in neuromuscular research, highlighting differences between generic versus disease-specific and global versus health-related QOL instruments. The phenomenon of response shift is reviewed. Commonly used QOL instruments are reviewed for amyotrophic lateral sclerosis, muscle diseases, myasthenia gravis, and polyneuropathy. We also review some of what is known about QOL for patients with these neuromuscular disorders.

AB - In this review we present an overview of quality of life (QOL) and QOL measures in neuromuscular disorders. We discuss the characteristics of QOL measures used in neuromuscular research, highlighting differences between generic versus disease-specific and global versus health-related QOL instruments. The phenomenon of response shift is reviewed. Commonly used QOL instruments are reviewed for amyotrophic lateral sclerosis, muscle diseases, myasthenia gravis, and polyneuropathy. We also review some of what is known about QOL for patients with these neuromuscular disorders.

UR - http://www.scopus.com/inward/record.url?scp=84862328289&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84862328289&partnerID=8YFLogxK

U2 - 10.1002/mus.23245

DO - 10.1002/mus.23245

M3 - Review article

C2 - 22644588

AN - SCOPUS:84862328289

VL - 46

SP - 9

EP - 25

JO - Muscle and Nerve

JF - Muscle and Nerve

SN - 0148-639X

IS - 1

ER -