Strategic recruitment of an ethnically diverse cohort of overweight survivors of breast cancer with lymphedema

Kathleen Sturgeon, Renata Hackley, Anna Fornash, Lorraine T. Dean, Monica Laudermilk, Justin C. Brown, David B. Sarwer, Angela M. DeMichele, Andrea B. Troxel, Kathryn Schmitz

Research output: Contribution to journalArticle

1 Citation (Scopus)

Abstract

BACKGROUND: Black women are more likely to experience adverse effects from cancer treatment such as lymphedema. Thus, black women may particularly benefit from research regarding interventions to improve lymphedema. Herein, the authors report the challenges and strategies related to the recruitment of minority survivors of breast cancer and to the recruitment of survivors of breast cancer with lymphedema into the Women In Steady Exercise Research (WISER) Survivor Clinical Trial. METHODS: Subjects for this community-based trial were recruited from the Philadelphia area through active (mailings) and passive (printed materials and Web site) recruitment strategies. In addition, education sessions coordinated through partner hospitals in communities with a predominantly minority population were conducted to increase awareness of lymphedema in survivors of breast cancer. Women who were interested in the study were screened for lymphedema via telephone questionnaire and invited to see a study-related certified lymphedema therapist to confirm the presence of lymphedema. RESULTS: Screening was conducted among 2295 women: 628 were eligible, 450 consented, and 351 were randomized. Minority women comprised 38% of the study population. Letters to women on state and hospital registries resulted in a 0.4% randomization rate; education sessions yielded a 10% randomization rate. The authors observed that approximately 23.6% of the study sample had no previous diagnosis of lymphedema. CONCLUSIONS: The WISER Survivor Clinical Trial faced multiple recruitment challenges and used unique strategies to successfully enroll minority survivors of breast cancer into a lifestyle intervention. Cancer 2018;124:95-104.

Original languageEnglish (US)
Pages (from-to)95-104
Number of pages10
JournalCancer
Volume124
Issue number1
DOIs
StatePublished - Jan 1 2018

Fingerprint

Lymphedema
Survivors
Breast Neoplasms
Random Allocation
Research
Clinical Trials
Exercise
Education
State Hospitals
Breast Cancer Lymphedema
Telephone
Population
Registries
Life Style
Neoplasms

All Science Journal Classification (ASJC) codes

  • Oncology
  • Cancer Research

Cite this

Sturgeon, Kathleen ; Hackley, Renata ; Fornash, Anna ; Dean, Lorraine T. ; Laudermilk, Monica ; Brown, Justin C. ; Sarwer, David B. ; DeMichele, Angela M. ; Troxel, Andrea B. ; Schmitz, Kathryn. / Strategic recruitment of an ethnically diverse cohort of overweight survivors of breast cancer with lymphedema. In: Cancer. 2018 ; Vol. 124, No. 1. pp. 95-104.
@article{07b781d4bfa44f8d8aec26c24d37dafe,
title = "Strategic recruitment of an ethnically diverse cohort of overweight survivors of breast cancer with lymphedema",
abstract = "BACKGROUND: Black women are more likely to experience adverse effects from cancer treatment such as lymphedema. Thus, black women may particularly benefit from research regarding interventions to improve lymphedema. Herein, the authors report the challenges and strategies related to the recruitment of minority survivors of breast cancer and to the recruitment of survivors of breast cancer with lymphedema into the Women In Steady Exercise Research (WISER) Survivor Clinical Trial. METHODS: Subjects for this community-based trial were recruited from the Philadelphia area through active (mailings) and passive (printed materials and Web site) recruitment strategies. In addition, education sessions coordinated through partner hospitals in communities with a predominantly minority population were conducted to increase awareness of lymphedema in survivors of breast cancer. Women who were interested in the study were screened for lymphedema via telephone questionnaire and invited to see a study-related certified lymphedema therapist to confirm the presence of lymphedema. RESULTS: Screening was conducted among 2295 women: 628 were eligible, 450 consented, and 351 were randomized. Minority women comprised 38{\%} of the study population. Letters to women on state and hospital registries resulted in a 0.4{\%} randomization rate; education sessions yielded a 10{\%} randomization rate. The authors observed that approximately 23.6{\%} of the study sample had no previous diagnosis of lymphedema. CONCLUSIONS: The WISER Survivor Clinical Trial faced multiple recruitment challenges and used unique strategies to successfully enroll minority survivors of breast cancer into a lifestyle intervention. Cancer 2018;124:95-104.",
author = "Kathleen Sturgeon and Renata Hackley and Anna Fornash and Dean, {Lorraine T.} and Monica Laudermilk and Brown, {Justin C.} and Sarwer, {David B.} and DeMichele, {Angela M.} and Troxel, {Andrea B.} and Kathryn Schmitz",
year = "2018",
month = "1",
day = "1",
doi = "10.1002/cncr.30935",
language = "English (US)",
volume = "124",
pages = "95--104",
journal = "Cancer",
issn = "0008-543X",
publisher = "John Wiley and Sons Inc.",
number = "1",

}

Sturgeon, K, Hackley, R, Fornash, A, Dean, LT, Laudermilk, M, Brown, JC, Sarwer, DB, DeMichele, AM, Troxel, AB & Schmitz, K 2018, 'Strategic recruitment of an ethnically diverse cohort of overweight survivors of breast cancer with lymphedema', Cancer, vol. 124, no. 1, pp. 95-104. https://doi.org/10.1002/cncr.30935

Strategic recruitment of an ethnically diverse cohort of overweight survivors of breast cancer with lymphedema. / Sturgeon, Kathleen; Hackley, Renata; Fornash, Anna; Dean, Lorraine T.; Laudermilk, Monica; Brown, Justin C.; Sarwer, David B.; DeMichele, Angela M.; Troxel, Andrea B.; Schmitz, Kathryn.

In: Cancer, Vol. 124, No. 1, 01.01.2018, p. 95-104.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Strategic recruitment of an ethnically diverse cohort of overweight survivors of breast cancer with lymphedema

AU - Sturgeon, Kathleen

AU - Hackley, Renata

AU - Fornash, Anna

AU - Dean, Lorraine T.

AU - Laudermilk, Monica

AU - Brown, Justin C.

AU - Sarwer, David B.

AU - DeMichele, Angela M.

AU - Troxel, Andrea B.

AU - Schmitz, Kathryn

PY - 2018/1/1

Y1 - 2018/1/1

N2 - BACKGROUND: Black women are more likely to experience adverse effects from cancer treatment such as lymphedema. Thus, black women may particularly benefit from research regarding interventions to improve lymphedema. Herein, the authors report the challenges and strategies related to the recruitment of minority survivors of breast cancer and to the recruitment of survivors of breast cancer with lymphedema into the Women In Steady Exercise Research (WISER) Survivor Clinical Trial. METHODS: Subjects for this community-based trial were recruited from the Philadelphia area through active (mailings) and passive (printed materials and Web site) recruitment strategies. In addition, education sessions coordinated through partner hospitals in communities with a predominantly minority population were conducted to increase awareness of lymphedema in survivors of breast cancer. Women who were interested in the study were screened for lymphedema via telephone questionnaire and invited to see a study-related certified lymphedema therapist to confirm the presence of lymphedema. RESULTS: Screening was conducted among 2295 women: 628 were eligible, 450 consented, and 351 were randomized. Minority women comprised 38% of the study population. Letters to women on state and hospital registries resulted in a 0.4% randomization rate; education sessions yielded a 10% randomization rate. The authors observed that approximately 23.6% of the study sample had no previous diagnosis of lymphedema. CONCLUSIONS: The WISER Survivor Clinical Trial faced multiple recruitment challenges and used unique strategies to successfully enroll minority survivors of breast cancer into a lifestyle intervention. Cancer 2018;124:95-104.

AB - BACKGROUND: Black women are more likely to experience adverse effects from cancer treatment such as lymphedema. Thus, black women may particularly benefit from research regarding interventions to improve lymphedema. Herein, the authors report the challenges and strategies related to the recruitment of minority survivors of breast cancer and to the recruitment of survivors of breast cancer with lymphedema into the Women In Steady Exercise Research (WISER) Survivor Clinical Trial. METHODS: Subjects for this community-based trial were recruited from the Philadelphia area through active (mailings) and passive (printed materials and Web site) recruitment strategies. In addition, education sessions coordinated through partner hospitals in communities with a predominantly minority population were conducted to increase awareness of lymphedema in survivors of breast cancer. Women who were interested in the study were screened for lymphedema via telephone questionnaire and invited to see a study-related certified lymphedema therapist to confirm the presence of lymphedema. RESULTS: Screening was conducted among 2295 women: 628 were eligible, 450 consented, and 351 were randomized. Minority women comprised 38% of the study population. Letters to women on state and hospital registries resulted in a 0.4% randomization rate; education sessions yielded a 10% randomization rate. The authors observed that approximately 23.6% of the study sample had no previous diagnosis of lymphedema. CONCLUSIONS: The WISER Survivor Clinical Trial faced multiple recruitment challenges and used unique strategies to successfully enroll minority survivors of breast cancer into a lifestyle intervention. Cancer 2018;124:95-104.

UR - http://www.scopus.com/inward/record.url?scp=85029234325&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85029234325&partnerID=8YFLogxK

U2 - 10.1002/cncr.30935

DO - 10.1002/cncr.30935

M3 - Article

C2 - 28881471

AN - SCOPUS:85029234325

VL - 124

SP - 95

EP - 104

JO - Cancer

JF - Cancer

SN - 0008-543X

IS - 1

ER -