The big bad wolf: Lupus, identity, and african american women

Kesha Morant Williams, Ronald L. Jackson

Research output: Chapter in Book/Report/Conference proceedingChapter

Abstract

Few people learned about the real big bad wolf–lupus, which destroys autoimmune systems, causes excruciating physical pain, and inhibits any predictability to daily life. In 2011, the first lupus drug since 1955 was approved by the FDA. Unfortunately the drug is least effective for those with the greatest need as African Americans "did not appear to respond to Benlysta as well as other patients". The effects of the disease and the identity changes that occur are often managed through social support. Those living with lupus sometimes feel isolated from the normalcy of life. Research supports that social support among African American women is higher than that in other communities and is a phenomenon others desire to emulate. This chapter presents the interpretive study to explore the ways lupus affects the identity of the participants. It also presents the case study to explore the experiences of eight African American women at various stages of life living with lupus.

Original languageEnglish (US)
Title of host publicationRace, Gender, and Identity
Subtitle of host publicationA Social Science Comparative Analysis of Africana Culture
PublisherTaylor and Francis
Pages65-80
Number of pages16
ISBN (Electronic)9781351495011
ISBN (Print)9781412852630
DOIs
Publication statusPublished - Jan 1 2017

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All Science Journal Classification (ASJC) codes

  • Social Sciences(all)

Cite this

Williams, K. M., & Jackson, R. L. (2017). The big bad wolf: Lupus, identity, and african american women. In Race, Gender, and Identity: A Social Science Comparative Analysis of Africana Culture (pp. 65-80). Taylor and Francis. https://doi.org/10.4324/9781315127965