The Caregiver Quality of Life Index-Cancer (CQOLC) scale: Development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer

M. A. Weitzner, P. B. Jacobsen, Henry Wagner Jr., J. Friedland, C. Cox

Research output: Contribution to journalArticle

225 Citations (Scopus)

Abstract

Family caregivers have become increasingly responsible for providing home care for cancer patients. Research has documented the distress of family caregivers; however, little has been done to evaluate the broader impact of caregiving on quality of life (QoL). The objectives of this study were to evaluate the reliability and validity of the Caregiver Quality of Life Index- Cancer (CQOLC), a new self-report instrument. Two hundred and sixty-three family caregivers of patients with lung, breast or prostate neoplasms participated. Test-retest reliability was 0.95 and internal consistency was 0.91. As expected, there were moderate correlations with overall mental health (r = 0.64), emotional distress (r = -0.50 to -0.52), burden (r = - 0.65) and patient's performance status (r = -0.47) and low correlations with overall physical health (r = 0.13), social support (r = 0.22) and social desirability (r = 0.08). These results show that increased overall mental health is associated with better QoL, while more emotional distress and worsening patient performance status are associated with poorer QoL. Thus, the CQOLC appears to possess adequate validity, test-retest reliability and internal consistency. Future directions include further evaluation of sensitivity to change and factor analysis to determine the principal health- related QoL domains evaluated by the CQOLC.

Original languageEnglish (US)
Pages (from-to)55-63
Number of pages9
JournalQuality of Life Research
Volume8
Issue number1-2
DOIs
StatePublished - Aug 11 1999

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Caregivers
Quality of Life
Neoplasms
Reproducibility of Results
Mental Health
Social Desirability
Home Care Services
Social Support
Self Report
Statistical Factor Analysis
Lung Neoplasms
Prostatic Neoplasms
Breast Neoplasms
Health
Research

All Science Journal Classification (ASJC) codes

  • Public Health, Environmental and Occupational Health

Cite this

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title = "The Caregiver Quality of Life Index-Cancer (CQOLC) scale: Development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer",
abstract = "Family caregivers have become increasingly responsible for providing home care for cancer patients. Research has documented the distress of family caregivers; however, little has been done to evaluate the broader impact of caregiving on quality of life (QoL). The objectives of this study were to evaluate the reliability and validity of the Caregiver Quality of Life Index- Cancer (CQOLC), a new self-report instrument. Two hundred and sixty-three family caregivers of patients with lung, breast or prostate neoplasms participated. Test-retest reliability was 0.95 and internal consistency was 0.91. As expected, there were moderate correlations with overall mental health (r = 0.64), emotional distress (r = -0.50 to -0.52), burden (r = - 0.65) and patient's performance status (r = -0.47) and low correlations with overall physical health (r = 0.13), social support (r = 0.22) and social desirability (r = 0.08). These results show that increased overall mental health is associated with better QoL, while more emotional distress and worsening patient performance status are associated with poorer QoL. Thus, the CQOLC appears to possess adequate validity, test-retest reliability and internal consistency. Future directions include further evaluation of sensitivity to change and factor analysis to determine the principal health- related QoL domains evaluated by the CQOLC.",
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The Caregiver Quality of Life Index-Cancer (CQOLC) scale : Development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer. / Weitzner, M. A.; Jacobsen, P. B.; Wagner Jr., Henry; Friedland, J.; Cox, C.

In: Quality of Life Research, Vol. 8, No. 1-2, 11.08.1999, p. 55-63.

Research output: Contribution to journalArticle

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