Understanding patient information needs about their clinical laboratory results: A study of social Q&A site

Zhan Zhang, Yu Lu, Yubo Kou, Danny T.Y. Wu, Jina Huh-Yoo, Zhe He

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Abstract

Clinical data, such as laboratory test results, is increasingly being made available to patients through patient portals. However, patients often have difficulties understanding and acting upon the clinical data presented in portals. As such, many turn to online resources to fill their knowledge gaps and obtain actionable advice. In this work, we present a content analysis of the questions posted in a major social Q&A site to characterize lay people's general information needs concerning laboratory test results and to inform the design of patient portals for supporting patients' understanding of clinical data. We identified 15 information needs related to laboratory test results, and clustered them under four themes: understanding the results of lab test, interpreting doctor's diagnosis, learning about lab tests, and consulting the next steps. We draw on our findings to discuss design opportunities for supporting the understanding of laboratory results.

Original languageEnglish (US)
Title of host publicationMEDINFO 2019
Subtitle of host publicationHealth and Wellbeing e-Networks for All - Proceedings of the 17th World Congress on Medical and Health Informatics
EditorsBrigitte Seroussi, Lucila Ohno-Machado, Lucila Ohno-Machado, Brigitte Seroussi
PublisherIOS Press
Pages1403-1407
Number of pages5
ISBN (Electronic)9781643680026
DOIs
StatePublished - Aug 21 2019
Event17th World Congress on Medical and Health Informatics, MEDINFO 2019 - Lyon, France
Duration: Aug 25 2019Aug 30 2019

Publication series

NameStudies in Health Technology and Informatics
Volume264
ISSN (Print)0926-9630
ISSN (Electronic)1879-8365

Conference

Conference17th World Congress on Medical and Health Informatics, MEDINFO 2019
CountryFrance
CityLyon
Period8/25/198/30/19

Fingerprint

Clinical laboratories
Learning
Patient Portals

All Science Journal Classification (ASJC) codes

  • Biomedical Engineering
  • Health Informatics
  • Health Information Management

Cite this

Zhang, Z., Lu, Y., Kou, Y., Wu, D. T. Y., Huh-Yoo, J., & He, Z. (2019). Understanding patient information needs about their clinical laboratory results: A study of social Q&A site. In B. Seroussi, L. Ohno-Machado, L. Ohno-Machado, & B. Seroussi (Eds.), MEDINFO 2019: Health and Wellbeing e-Networks for All - Proceedings of the 17th World Congress on Medical and Health Informatics (pp. 1403-1407). (Studies in Health Technology and Informatics; Vol. 264). IOS Press. https://doi.org/10.3233/SHTI190458
Zhang, Zhan ; Lu, Yu ; Kou, Yubo ; Wu, Danny T.Y. ; Huh-Yoo, Jina ; He, Zhe. / Understanding patient information needs about their clinical laboratory results : A study of social Q&A site. MEDINFO 2019: Health and Wellbeing e-Networks for All - Proceedings of the 17th World Congress on Medical and Health Informatics. editor / Brigitte Seroussi ; Lucila Ohno-Machado ; Lucila Ohno-Machado ; Brigitte Seroussi. IOS Press, 2019. pp. 1403-1407 (Studies in Health Technology and Informatics).
@inproceedings{14d57de703f4487098b2d2159db1d471,
title = "Understanding patient information needs about their clinical laboratory results: A study of social Q&A site",
abstract = "Clinical data, such as laboratory test results, is increasingly being made available to patients through patient portals. However, patients often have difficulties understanding and acting upon the clinical data presented in portals. As such, many turn to online resources to fill their knowledge gaps and obtain actionable advice. In this work, we present a content analysis of the questions posted in a major social Q&A site to characterize lay people's general information needs concerning laboratory test results and to inform the design of patient portals for supporting patients' understanding of clinical data. We identified 15 information needs related to laboratory test results, and clustered them under four themes: understanding the results of lab test, interpreting doctor's diagnosis, learning about lab tests, and consulting the next steps. We draw on our findings to discuss design opportunities for supporting the understanding of laboratory results.",
author = "Zhan Zhang and Yu Lu and Yubo Kou and Wu, {Danny T.Y.} and Jina Huh-Yoo and Zhe He",
year = "2019",
month = "8",
day = "21",
doi = "10.3233/SHTI190458",
language = "English (US)",
series = "Studies in Health Technology and Informatics",
publisher = "IOS Press",
pages = "1403--1407",
editor = "Brigitte Seroussi and Lucila Ohno-Machado and Lucila Ohno-Machado and Brigitte Seroussi",
booktitle = "MEDINFO 2019",
address = "Netherlands",

}

Zhang, Z, Lu, Y, Kou, Y, Wu, DTY, Huh-Yoo, J & He, Z 2019, Understanding patient information needs about their clinical laboratory results: A study of social Q&A site. in B Seroussi, L Ohno-Machado, L Ohno-Machado & B Seroussi (eds), MEDINFO 2019: Health and Wellbeing e-Networks for All - Proceedings of the 17th World Congress on Medical and Health Informatics. Studies in Health Technology and Informatics, vol. 264, IOS Press, pp. 1403-1407, 17th World Congress on Medical and Health Informatics, MEDINFO 2019, Lyon, France, 8/25/19. https://doi.org/10.3233/SHTI190458

Understanding patient information needs about their clinical laboratory results : A study of social Q&A site. / Zhang, Zhan; Lu, Yu; Kou, Yubo; Wu, Danny T.Y.; Huh-Yoo, Jina; He, Zhe.

MEDINFO 2019: Health and Wellbeing e-Networks for All - Proceedings of the 17th World Congress on Medical and Health Informatics. ed. / Brigitte Seroussi; Lucila Ohno-Machado; Lucila Ohno-Machado; Brigitte Seroussi. IOS Press, 2019. p. 1403-1407 (Studies in Health Technology and Informatics; Vol. 264).

Research output: Chapter in Book/Report/Conference proceedingConference contribution

TY - GEN

T1 - Understanding patient information needs about their clinical laboratory results

T2 - A study of social Q&A site

AU - Zhang, Zhan

AU - Lu, Yu

AU - Kou, Yubo

AU - Wu, Danny T.Y.

AU - Huh-Yoo, Jina

AU - He, Zhe

PY - 2019/8/21

Y1 - 2019/8/21

N2 - Clinical data, such as laboratory test results, is increasingly being made available to patients through patient portals. However, patients often have difficulties understanding and acting upon the clinical data presented in portals. As such, many turn to online resources to fill their knowledge gaps and obtain actionable advice. In this work, we present a content analysis of the questions posted in a major social Q&A site to characterize lay people's general information needs concerning laboratory test results and to inform the design of patient portals for supporting patients' understanding of clinical data. We identified 15 information needs related to laboratory test results, and clustered them under four themes: understanding the results of lab test, interpreting doctor's diagnosis, learning about lab tests, and consulting the next steps. We draw on our findings to discuss design opportunities for supporting the understanding of laboratory results.

AB - Clinical data, such as laboratory test results, is increasingly being made available to patients through patient portals. However, patients often have difficulties understanding and acting upon the clinical data presented in portals. As such, many turn to online resources to fill their knowledge gaps and obtain actionable advice. In this work, we present a content analysis of the questions posted in a major social Q&A site to characterize lay people's general information needs concerning laboratory test results and to inform the design of patient portals for supporting patients' understanding of clinical data. We identified 15 information needs related to laboratory test results, and clustered them under four themes: understanding the results of lab test, interpreting doctor's diagnosis, learning about lab tests, and consulting the next steps. We draw on our findings to discuss design opportunities for supporting the understanding of laboratory results.

UR - http://www.scopus.com/inward/record.url?scp=85071454875&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85071454875&partnerID=8YFLogxK

U2 - 10.3233/SHTI190458

DO - 10.3233/SHTI190458

M3 - Conference contribution

C2 - 31438157

AN - SCOPUS:85071454875

T3 - Studies in Health Technology and Informatics

SP - 1403

EP - 1407

BT - MEDINFO 2019

A2 - Seroussi, Brigitte

A2 - Ohno-Machado, Lucila

A2 - Ohno-Machado, Lucila

A2 - Seroussi, Brigitte

PB - IOS Press

ER -

Zhang Z, Lu Y, Kou Y, Wu DTY, Huh-Yoo J, He Z. Understanding patient information needs about their clinical laboratory results: A study of social Q&A site. In Seroussi B, Ohno-Machado L, Ohno-Machado L, Seroussi B, editors, MEDINFO 2019: Health and Wellbeing e-Networks for All - Proceedings of the 17th World Congress on Medical and Health Informatics. IOS Press. 2019. p. 1403-1407. (Studies in Health Technology and Informatics). https://doi.org/10.3233/SHTI190458