Unpacking the infrastructuring work of patients and caregivers around the world

Yunan Chen; Xinning Gui; Claus Bossen; Valeria Herskovic; Nervo Verdezoto; Xiaojuan Ma; Naveen Bagalkot; Bernd Ploderer

doi:10.1145/3290607.3299021

Unpacking the infrastructuring work of patients and caregivers around the world

Yunan Chen, Xinning Gui, Claus Bossen, Valeria Herskovic, Nervo Verdezoto, Xiaojuan Ma, Naveen Bagalkot, Bernd Ploderer

College of Information Sciences and Technology

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution

Abstract

Many healthcare systems around the world are noted as fragmented, complex and low-quality, leaving patients and caregivers with no choice but to engage in “infrastructuring work” to make it function for them. However, the work patients do to construct their functioning health service systems often remain invisible, with very little resources and technologies available to assist them. This workshop aims to bring together researchers, health practitioners, and patients to examine, discuss, and brainstorm ways to re-envision our healthcare service systems from the perspective of patients and caregivers. We aim to unpack the types of work that patients and caregivers do to reconfigure, reconstruct and adapt the healthcare infrastructure, and to brainstorm design solutions that can provide better infrastructuring assistance to them.

Original language	English (US)
Title of host publication	CHI EA 2019 - Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems
Publisher	Association for Computing Machinery
ISBN (Electronic)	9781450359719
DOIs	https://doi.org/10.1145/3290607.3299021
State	Published - May 2 2019
Event	2019 CHI Conference on Human Factors in Computing Systems, CHI EA 2019 - Glasgow, United Kingdom Duration: May 4 2019 → May 9 2019

Publication series

Name	Conference on Human Factors in Computing Systems - Proceedings

Conference

Conference	2019 CHI Conference on Human Factors in Computing Systems, CHI EA 2019
Country	United Kingdom
City	Glasgow
Period	5/4/19 → 5/9/19

All Science Journal Classification (ASJC) codes

Software
Human-Computer Interaction
Computer Graphics and Computer-Aided Design

Access to Document

10.1145/3290607.3299021

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Chen, Y., Gui, X., Bossen, C., Herskovic, V., Verdezoto, N., Ma, X., Bagalkot, N., & Ploderer, B. (2019). Unpacking the infrastructuring work of patients and caregivers around the world. In CHI EA 2019 - Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems [3299021] (Conference on Human Factors in Computing Systems - Proceedings). Association for Computing Machinery. https://doi.org/10.1145/3290607.3299021

Chen, Yunan ; Gui, Xinning ; Bossen, Claus ; Herskovic, Valeria ; Verdezoto, Nervo ; Ma, Xiaojuan ; Bagalkot, Naveen ; Ploderer, Bernd. / Unpacking the infrastructuring work of patients and caregivers around the world. CHI EA 2019 - Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems. Association for Computing Machinery, 2019. (Conference on Human Factors in Computing Systems - Proceedings).

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Chen, Y, Gui, X, Bossen, C, Herskovic, V, Verdezoto, N, Ma, X, Bagalkot, N & Ploderer, B 2019, Unpacking the infrastructuring work of patients and caregivers around the world. in CHI EA 2019 - Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems., 3299021, Conference on Human Factors in Computing Systems - Proceedings, Association for Computing Machinery, 2019 CHI Conference on Human Factors in Computing Systems, CHI EA 2019, Glasgow, United Kingdom, 5/4/19. https://doi.org/10.1145/3290607.3299021

Unpacking the infrastructuring work of patients and caregivers around the world. / Chen, Yunan; Gui, Xinning; Bossen, Claus; Herskovic, Valeria; Verdezoto, Nervo; Ma, Xiaojuan; Bagalkot, Naveen; Ploderer, Bernd.

CHI EA 2019 - Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems. Association for Computing Machinery, 2019. 3299021 (Conference on Human Factors in Computing Systems - Proceedings).

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution

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Chen Y, Gui X, Bossen C, Herskovic V, Verdezoto N, Ma X et al. Unpacking the infrastructuring work of patients and caregivers around the world. In CHI EA 2019 - Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems. Association for Computing Machinery. 2019. 3299021. (Conference on Human Factors in Computing Systems - Proceedings). https://doi.org/10.1145/3290607.3299021