Unpacking the infrastructuring work of patients and caregivers around the world

Yunan Chen, Xinning Gui, Claus Bossen, Valeria Herskovic, Nervo Verdezoto, Xiaojuan Ma, Naveen Bagalkot, Bernd Ploderer

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Abstract

Many healthcare systems around the world are noted as fragmented, complex and low-quality, leaving patients and caregivers with no choice but to engage in “infrastructuring work” to make it function for them. However, the work patients do to construct their functioning health service systems often remain invisible, with very little resources and technologies available to assist them. This workshop aims to bring together researchers, health practitioners, and patients to examine, discuss, and brainstorm ways to re-envision our healthcare service systems from the perspective of patients and caregivers. We aim to unpack the types of work that patients and caregivers do to reconfigure, reconstruct and adapt the healthcare infrastructure, and to brainstorm design solutions that can provide better infrastructuring assistance to them.

Original languageEnglish (US)
Title of host publicationCHI EA 2019 - Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems
PublisherAssociation for Computing Machinery
ISBN (Electronic)9781450359719
DOIs
StatePublished - May 2 2019
Event2019 CHI Conference on Human Factors in Computing Systems, CHI EA 2019 - Glasgow, United Kingdom
Duration: May 4 2019May 9 2019

Publication series

NameConference on Human Factors in Computing Systems - Proceedings

Conference

Conference2019 CHI Conference on Human Factors in Computing Systems, CHI EA 2019
CountryUnited Kingdom
CityGlasgow
Period5/4/195/9/19

All Science Journal Classification (ASJC) codes

  • Software
  • Human-Computer Interaction
  • Computer Graphics and Computer-Aided Design

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  • Cite this

    Chen, Y., Gui, X., Bossen, C., Herskovic, V., Verdezoto, N., Ma, X., Bagalkot, N., & Ploderer, B. (2019). Unpacking the infrastructuring work of patients and caregivers around the world. In CHI EA 2019 - Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems [3299021] (Conference on Human Factors in Computing Systems - Proceedings). Association for Computing Machinery. https://doi.org/10.1145/3290607.3299021