Abstract

Background: For various cultural and historical reasons, African Americans are less likely than Caucasians to engage in advance care planning (ACP) for healthcare decisions. Purpose: This pilot study tested whether an interactive computer program could help overcome barriers to effective ACP among African Americans. Methods: African American adults were recruited from traditionally Black churches to complete an interactive computer program on ACP, pre-/post-questionnaires, and a follow-up phone interview. Results: Eighteen adults (mean age -53.2 years, 83% female) completed the program without any problems. Knowledge about ACP significantly Increased following the computerintervention (44.9%^ 61.3%, p-0.0004), as did Individuals' sense of self-determination. Participants were highly satisfied with the ACP process (9.4; 1 - not at all satisfied, 10 - extremely satisfied), and reported that the computer-generated advance directive accurately reflected theirwishes (6.4; 1 - not at all accurate, 7 - extremely accurate). Follow-up phone interviews found that >80% of participants reported having shared their advance directives with family members and spokespeople. Conclusion: Preliminary evidence suggests that an interactive computer program can help African Americans engage in effective advance care planning, including creating an accurate advance directive document that will be shared with loved ones.

Original languageEnglish (US)
Pages (from-to)26-32
Number of pages7
JournalJournal of the National Medical Association
Volume107
Issue number1
DOIs
StatePublished - Feb 1 2015

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Advance Care Planning
African Americans
Software
Advance Directives
Interviews
Personal Autonomy
Delivery of Health Care

All Science Journal Classification (ASJC) codes

  • Medicine(all)

Cite this

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title = "Use of a computer program for advance care planning with african american participants",
abstract = "Background: For various cultural and historical reasons, African Americans are less likely than Caucasians to engage in advance care planning (ACP) for healthcare decisions. Purpose: This pilot study tested whether an interactive computer program could help overcome barriers to effective ACP among African Americans. Methods: African American adults were recruited from traditionally Black churches to complete an interactive computer program on ACP, pre-/post-questionnaires, and a follow-up phone interview. Results: Eighteen adults (mean age -53.2 years, 83{\%} female) completed the program without any problems. Knowledge about ACP significantly Increased following the computerintervention (44.9{\%}^ 61.3{\%}, p-0.0004), as did Individuals' sense of self-determination. Participants were highly satisfied with the ACP process (9.4; 1 - not at all satisfied, 10 - extremely satisfied), and reported that the computer-generated advance directive accurately reflected theirwishes (6.4; 1 - not at all accurate, 7 - extremely accurate). Follow-up phone interviews found that >80{\%} of participants reported having shared their advance directives with family members and spokespeople. Conclusion: Preliminary evidence suggests that an interactive computer program can help African Americans engage in effective advance care planning, including creating an accurate advance directive document that will be shared with loved ones.",
author = "Markham, {Sarah A.} and Levi, {Benjamin H.} and Green, {Michael J.} and Schubart, {Jane R.}",
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AU - Markham, Sarah A.

AU - Levi, Benjamin H.

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N2 - Background: For various cultural and historical reasons, African Americans are less likely than Caucasians to engage in advance care planning (ACP) for healthcare decisions. Purpose: This pilot study tested whether an interactive computer program could help overcome barriers to effective ACP among African Americans. Methods: African American adults were recruited from traditionally Black churches to complete an interactive computer program on ACP, pre-/post-questionnaires, and a follow-up phone interview. Results: Eighteen adults (mean age -53.2 years, 83% female) completed the program without any problems. Knowledge about ACP significantly Increased following the computerintervention (44.9%^ 61.3%, p-0.0004), as did Individuals' sense of self-determination. Participants were highly satisfied with the ACP process (9.4; 1 - not at all satisfied, 10 - extremely satisfied), and reported that the computer-generated advance directive accurately reflected theirwishes (6.4; 1 - not at all accurate, 7 - extremely accurate). Follow-up phone interviews found that >80% of participants reported having shared their advance directives with family members and spokespeople. Conclusion: Preliminary evidence suggests that an interactive computer program can help African Americans engage in effective advance care planning, including creating an accurate advance directive document that will be shared with loved ones.

AB - Background: For various cultural and historical reasons, African Americans are less likely than Caucasians to engage in advance care planning (ACP) for healthcare decisions. Purpose: This pilot study tested whether an interactive computer program could help overcome barriers to effective ACP among African Americans. Methods: African American adults were recruited from traditionally Black churches to complete an interactive computer program on ACP, pre-/post-questionnaires, and a follow-up phone interview. Results: Eighteen adults (mean age -53.2 years, 83% female) completed the program without any problems. Knowledge about ACP significantly Increased following the computerintervention (44.9%^ 61.3%, p-0.0004), as did Individuals' sense of self-determination. Participants were highly satisfied with the ACP process (9.4; 1 - not at all satisfied, 10 - extremely satisfied), and reported that the computer-generated advance directive accurately reflected theirwishes (6.4; 1 - not at all accurate, 7 - extremely accurate). Follow-up phone interviews found that >80% of participants reported having shared their advance directives with family members and spokespeople. Conclusion: Preliminary evidence suggests that an interactive computer program can help African Americans engage in effective advance care planning, including creating an accurate advance directive document that will be shared with loved ones.

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